Manifestations of Congenital Rubella Syndrome in Canada
A Follow-up Study
The purpose of this project was to undertake an updated investigation of the late Manifestations of Congenital Rubella Syndrome in Canada to complement the study published by the Canadian Deafblind and Rubella Association in 1999.
The objectives of the study were to:
- Confirm the existence of late onset medical conditions or manifestations reported by individuals with CRS in a study over fifteen years ago.
- Determine whether any changes in these average conditions had occurred over a period of time.
- Reinforce the valuable information available to family members and staff working in facilities which provide services for persons with CRS.
- Provide additional data to the bank of information that is being accumulated worldwide on the late onset phenomenon.
The project was approved for funding as part of special grant supplied by Federal Minister of Human Resources and Skills Development through the Social Development Partnerships Program (SDPP) in FY 2009-2010.