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1 – Promote deafblindness as a “unique” disability
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[list_item]Develop a CDBA definition of DEAFBLINDNESS[/list_item]
[list_item]Utilize assessment protocol to identify individuals who are deafblind[/list_item]
[list_item]Develop a national Registry of Canadians who are deafblind[/list_item]
[list_item]Prepare a Data Bank of Services specific of deafblindness[/list_item]
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2 – Promote lifelong Intervention for Canadians who are deafblind
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[list_item]Accept the “Principles of the CDBA Concept of Intervention”[/list_item]
[list_item]Prepare further documentation on Intervention
- role
- evaluation guides
- case studies
- parent perspectives
- professional perspectives
- success indicators
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[list_item]Establish training criteria and curriculum for Intervention and Intervenors.[/list_item]
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3 – Encourage and support the development of programs to meet the CDBA principles for deafblind persons
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[list_item]Encourage and support Chapters that provide direct services to meet CDBA standards including but not limited to:
- Independent Living
- Lifelong Intervention
- Summer Intervention
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[list_item]Encourage and support government and non-government agencies which provide services, such as educational, recreational, medical, and supported living[/list_item]
[list_item]Encourage and support Research proposals and projects:
- Medical: Rubella Prevention, Late onset medical symptoms, Cytomegalovirus (CMV), CHARGE Syndrome, Usher Syndrome, Acquired causes
- Etiology and Recording of Information Impact of Service Provision for more than 20 years
- Determine the Socio-Economic Impact of deafblindness on: The individual who is deafblind, Families Educational Systems, Communities, Employment, Extended Care facilities, Government participation
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[list_item]Encourage and support the development of a national Coordination Centre to maintain and disperse information from a Data Bank, Registry, and to be a contact base for networking.
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4 – Support a wide range of advocacy efforts
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[list_item]Public Awareness[/list_item]
[list_item]Communications (brochures, news magazines, publications, Internet) [/list_item]
[list_item]Fund raising[/list_item]
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5 -Develop effective partnerships with individuals, families, foundations, government and non-government agencies
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[list_item]Individual and Family support
- National (Emergency) Intervention Fund
- Family Weekends
- Workshops
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[list_item]Networking and information flow
- use of Internet, develop a CDBA home page
- communication by newsletters, other publications
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[list_item]Partner with foundations, government and non-government agencies on major initiatives such as research, awareness and service provisions[/list_item]
[list_item]Assessment of CDBA’s Internal Counterparts on topics such as:
- Formation of the organization
- Sources of funding
- Prevention programs
- Overview of service delivery.
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