All people who are deafblind will live rich meaningful lives

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Goals

1 – Promote deafblindness as a “unique” disability


  • Develop a CDBA definition of DEAFBLINDNESS

  • Utilize assessment protocol to identify individuals who are deafblind

  • Develop a national Registry of Canadians who are deafblind

  • Prepare a Data Bank of Services specific of deafblindness

2 – Promote lifelong Intervention for Canadians who are deafblind


  • Accept the “Principles of the CDBA Concept of Intervention”

  • Prepare further documentation on Intervention

    • role
    • evaluation guides
    • case studies
    • parent perspectives
    • professional perspectives
    • success indicators


  • Establish training criteria and curriculum for Intervention and Intervenors.

3 – Encourage and support the development of programs to meet the CDBA principles for deafblind persons


  • Encourage and support Chapters that provide direct services to meet CDBA standards including but not limited to:

    • Independent Living
    • Lifelong Intervention
    • Summer Intervention


  • Encourage and support government and non-government agencies which provide services, such as educational, recreational, medical, and supported living

  • Encourage and support Research proposals and projects:

    • Medical: Rubella Prevention, Late onset medical symptoms, Cytomegalovirus (CMV), CHARGE Syndrome, Usher Syndrome, Acquired causes
    • Etiology and Recording of Information Impact of Service Provision for more than 20 years
    • Determine the Socio-Economic Impact of deafblindness on: The individual who is deafblind, Families Educational Systems, Communities, Employment, Extended Care facilities, Government participation


  • Encourage and support the development of a national Coordination Centre to maintain and disperse information from a Data Bank, Registry, and to be a contact base for networking.


4 – Support a wide range of advocacy efforts


  • Public Awareness

  • Communications (brochures, news magazines, publications, Internet)

  • Fund raising

5 -Develop effective partnerships with individuals, families, foundations, government and non-government agencies


  • Individual and Family support

    • National (Emergency) Intervention Fund
    • Family Weekends
    • Workshops


  • Networking and information flow

    • use of Internet, develop a CDBA home page
    • communication by newsletters, other publications


  • Partner with foundations, government and non-government agencies on major initiatives such as research, awareness and service provisions

  • Assessment of CDBA’s Internal Counterparts on topics such as:

    • Formation of the organization
    • Sources of funding
    • Prevention programs
    • Overview of service delivery.


© 2019 · Canadian Deafblind Association | Charitable Registration Number: 11921 8956 RR0002

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